Battle with Right-Sided Congenital Diaphragmatic Hernia (CDH)

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Thursday, June 28, 2012

Vacation! Last Days 4,5, & 6

... At the beach, swimming, swapmeet, Mormon Battalion, and the Pier! 

Thursday we spent the day at the beach again!  We love it!  That morning though, Whitney threw up formula.  Which means her GJ feeding tube curled back in her stomach, feeding her stomach instead of her intestines.  This was the 3rd time so we pretty much just left it that way and "kept and eye on it."  Meaning we made sure the long part of the tube stayed in her stomach and didn't flip up into her esophagus due to all her retching!  Thankfully it didn't, and it's rare if it did, so we just continued to feed her as usual but dealing with more vomit than normal.  Thursday evening we walked on the pier to go eat at the resturant at the end called Ruby's.  We went there last year for lunch and it was pretty fun.  This time it was really crowded so we waited about 20-30 mins to be seated.  Then waited another 20 mins just to order food!  By the time our food got to us it was not even warm!  I mean, how long can it take to get our chicken strips and grilled cheese sandwich!?  It was just ridiculous!  So they took $5 off our tab and we didn't tip them.  3 hours total for cheap yet costly food is insane! Plus Whitney threw up while we were there and cries when the waitress comes around.  We went out to eat at IHOP another night and Whitney threw up there too!  I feel so bad that she doesn't like to go out to eat.  She does like to drink water but that also makes her vomit everywhere!  Don't worry though, I'm very prepared with my big cups to catch it in and bibs and extra clothes!

Friday I called the Dr. about her feeding tube and they scheduled us to get into IR to replace her tube on Monday afternoon.  Whitney gets only 2 hours off her feeding pump a day, but because she was throwing formula I tried to keep her on it all day.  Except for a little swim time.  She gets 51 mls of formula an hour which is just short of 2oz.  so not much at all.  When she's throwing up way over 2oz a day, we just keep her hooked up all day.  She always throws up if water gets in her mouth so she did a lot of that in the ocean. When she was in the pool though, I heard her coughing and knew she'd vomit so I ran her to a bush, in a vase... :)  So we just hung out in the cool condo all day, did the puzzle and got a long comfy nap!

Saturday, June 23, we went to San Diego again to hang out at the Swap Meet!  It was more like a gigantic yard sale as in "vendors" were just selling their old junk!  But I suppose to some people they could find something cool.  We got Whitney a cool toy and me a new cell phone case but that was it!  We did get some delicious kettle corn.  We like the Orange County Marketplace way better but it was closed that weekend!  Good thing we are moving to CA this year so we can go to that one! haha! 
Afterwards we headed to the Mormon Battalion Historic Site.  It was a pretty cool place and I learned alot.  Whitney did okay there but she was pretty tired.  We drove home and Whitney slept the whole way.   Later that evening we took one last walk on the pier to watch the sunset.  It was our last time to see the ocean and enjoy everything around.  Can't wait to be able to go more often because we will be living an hour away from the beach when we move!  We drove home Sunday morning and the 6 hours went by just fine, with few vomits and upsets! 

Panning for (fools) gold!

Covered Wagon!

Official Picture!

Walking toward the pier, pretty close to the timeshare!

Cold outside!

We barely made it in time to see the sun set! haha! 

Family Photo on the pier!   It was so cold we bought hot chocolate and Noodle soup!

Park fun on our way back!

Vacation! Day 3 at the Aquarium

Birch Aquarium at Scripps in San Diego

Riding on Dada's shoulders!  Good way to keep her close by!

Family pic with the eels! Lovely.

She really enjoyed looking at all these fish! 

Huge aquarium! Love this pic!

Cool Crab! 

Hanging out in the stroller. We used tons of hand sanitizer!!

Family pic outside! It was a great view!

Whitney playing in the water with boats

Colton, Papa, Me, Whit, & Clayton at the Scripps Aquarium

Shark Attack!

End of the fun aquarium.  We used our student ID's so it only cost $10 ea. and Whitney was free!  We bought a cool puzzle for us and some fun little toys for Whitney.  I'm thinking next time we should go to SeaWorld! Right!?

She probably would have jumped in! Ha ha! The weather was amazing! So nice with a cool wind!

Walking around a park by the ocean

Relaxing with Dada, enjoying the cool ocean breeze.

Thomas finished our puzzle!  He's good! Me... well, I found a few matches!

Wednesday, June 20, 2012

Vacation! Days 1 & 2 at the Beach

We are at Oceanside, CA! Bumming off my parents time share! We've been going to this same condo for the past like 10 years!  We really love it here!  There use to be a beach right down the street but now there is no sand on it so we drive to one past the pier and have to pay to park! Oh well. When we got here on Monday afternoon we got ready to go to the beach!  It was super cold and cloudy!

Whitney was so excited to play in the ocean! She ran out the the ocean and it was ice cold but that didn't stop her!  She wanted to go in even deeper!  We were really cold and she didn't want to get out!  She even got knocked down twice by some big waves.  We eventually took her to the tent to get warmed up a bit.  But as soon as she as dried off and warmer, she wiggled free and ran back out to the ocean!  She was laughing and screaming and running everywhere!  I tried holding her hand but she pulls away.  So I stood right next to her the whole time, it's a little scary with all those waves.  When she started shivering again I took her back in.  Then Thomas went out with her, then came back in.  Then mom went out with her and came back in. Then my dad went out with her for a while and came back in!   This girl is absolutely obsessed with the ocean!  She was crazy!   We taped her GJ tube good because we don't want and sand irritating it or anything else that could go wrong!  But most kids enjoy the beach just fine with out covering the tube.  We put gauze on top of the tube and covered in a big piece of tegaderm (tape). 

We also went to the beach on Tuesday too!  The beach was way more crowded today than yesterday.   It was actually really sunny and warm out!  That made it much easier to enjoy the ice cold water.  Whitney played out in the sand for about an hour before she fell asleep!  So we made up a nice comfy spot in the tent for her to sleep.  Thomas and I laid down beside her and slept for about 2 hours! I'm surprised she sleept that long!  Mom and Clayton were also relaxing/sleeping while Dad and Colton went bogie boarding and walked on the Jette.  I'm just kind of nervous to get in the freezing water while I'm 19 weeks pregnant!   When we woke up we played in the ocean for another two hours or so.  I'm glad she didn't go in as far as she did yesterday.   She mostly just ran around the shallow part but still went in pretty far.  We found a couple of cool shells to collect.   It was so much fun!  She also played in the sand this day and saw sand crabs!