Battle with Right-Sided Congenital Diaphragmatic Hernia (CDH)

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Lilypie Second Birthday tickers

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Thursday, March 31, 2011

CDH Awareness Day!

Today is CDH Awareness Day!  It is not official in the state of AZ...yet. But it really should be, just like every other awareness day or month (Breast Cancer, Heart Disease, ect.).  CDH is just as common as Spina Bifida and Cystic Fibrosis. March of Dimes helps all of these babies and next year I will for sure do the walk to raise money.   These babies are very special, only 50 % of them survive this terrible life threatening birth defect.  And the babies who do survive usually suffer many complications and delays  from all the medicines and surgeries and such.  We are very blessed and grateful for our baby Whitney to be with us, here on earth.  I would love for you all to say a special prayer today for all the families who are fighting or have fought this terrible defect! Thank you!

A friend of mine brought over some used baby girl clothes for us the other day and I found a turquoise ish shirt in the bags of clothes!  I was so happy because I've been searching for this color of shirt for today.  Then today I had the idea to write on it...CDH Awareness Day March 31, 2011. the back says...For Whitney RCDH & ECMO survivor 7-21-10

 Whitney wearing her last minute make shift turquoise CDH Awareness Day  Shirt!








3 comments:

  1. Lucky girl! She is doing so well considering what could be...:( Never met her but love her already! God gives challenges to make us stronger! I try to remember that with my sons arthritis

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  2. Yay CDH awareness day!!! Whitney is so darn cute in her shirt :) I love it.

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  3. She has some amazing hair. She is so beautiful!

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