Battle with Right-Sided Congenital Diaphragmatic Hernia (CDH)


Daisypath Anniversary tickers

Daisypath - Personal pictureDaisypath Anniversary tickers

Tuesday, September 13, 2011

Remembering

A little flash back...
I feel bad not posting anything on or about 9/11.  I was 14 going on 15 years old, a freshman in H.S. I was not at school like most wear when it happened.  I was in Utah, sleeping with my sisters and cousins. in my aunt and uncle's loft of their 3 story plus basement house.  We were up there for my mom's dad's funeral. My uncle came up and turned the t.v. on. We woke up and watched it, very confused.  I don't remember much about what I did, just that I was sad and couldn't stop thinking about the it the whole day.  We drove home that day.

  
MySpace Comments Chromaluna.com




MySpace Comments Chromaluna.com



Another flash back...
I know I don't normally think or write about the past but this is different.  This time last year... my husband and I spent the night at the NICU with Whitney for the first time!  Because the next day, September 14, we took her home! It was the happiest day and I'm getting emotional just thinking about it.  Anyway, I'll have to think of something to do for her and me to make it special!
I have a big picture of her homecoming on my framed on my wall.  I also have a picture of her a couple days old framed on my wall.  And a more recent one of her. :)







We had an appointment with Whitney's pediatric surgeon this week.  The pediatric surgeon said that she's not ready for me to do the blenderized diet/homemade formula. The Dr. is just concerned that it will clog the tube. The tube cannot be replaced till the end of October (2 months after surgery). So, if it were to clog with thicker formula, we couldn't use it till it's able to be replaced. The surgeon is always saying how she had OCD (obsessive compulsive disorder) and that she'd rather prevent things then have to fix them! I'm perfectly okay with that and love that she has OCD! We will be seeing her every 2 weeks for her to checkup on the g-tube. Thats a lot of visits and a long drive!








I have a lot of family (and friends) Birthdays in September!  Happy Birthday to Grandpa P., Grandma B. my brother, my brother in-law (my sister's husband), my brother in-law (my husband's bro.), and my father in-law! Also, Happy Birthday to my best childhood friends Whitney S. (W.) and Alyssa M. (R.) I really love and miss you all!

1 comment:

  1. Thanks for the shout out, Alicia! :-) I am so glad that Whitney has been home and safe for a year already! I love reading your blog and hope to get home to AZ soon so I can visit you and meet your sweet girl :)

    ReplyDelete