Battle with Right-Sided Congenital Diaphragmatic Hernia (CDH)

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Tuesday, July 13, 2010

Week 39

Hopefully next time I write here my baby girl will be born! You may have noticed I deleted her middle name on the title of my blog. Thomas & I decided that that name (Ka'imilani) was not appropriate in her situation (meaning one seeking heaven). It was suppose to be more a spiritual meaning, not realistic. We want her to seek to stay on Earth! So Thomas's Dad is going to pick out a name for her! A strong family name. I don't care how long or short it is. It's a Hawaiian tradition anyway.

I just spent the last 2 hours reading other Blogs about CDH Babies. Some angels, some survivors. People had so much hope that their baby would make it. Some babies fought for only hours, some for months, but they all earned their wings. I had so much hope. Then I lost it for a while. I tried to get down on my knees again but it felt pointless, I just couldn't. Then realized that I was being selfish for not praying for my baby/family. Satan knows my weakness which has always been prayer. It's not Not remembering to pray but believing in prayer and having faith that Heavenly Father is listening. I will pray for my Whitney. She will make it.

Today Thomas & I went in for my Dr. appt. They did the BPP ultrasound. She had to buzz Whitney this time to get her to wake up a little. DR. G. did and exam and this time he did strip the membranes! It was MORE painful than last week. He said that last week he "didn't do a good job" because I didn't bleed. This time I did. That will hopefully get things moving. I haven't even experienced any Braxton-Hicks contractions yet. I'm only 1cm dilated. So if she doesn't come on her own sometime this week then they will induce me on the 19th (40 wk. & one day). I hope she doesn't come on my sister Jessica's birthday!

Nurse R. assured us that everyone, all the DR.'s, General OBs, Perinatologist, Neonatologist, & midwife's know about our baby's CDH because they all work for St. Joe's. The only people who don't know is the nurses because there are 150 of them. But when they see my chart/history, they will know what's going on and how to take care of it. And of course I will make sure everyone knows that my baby needs help.

Please continue to pray for my baby.


  1. Good luck! I will definitely pray for you and Whitney this week and I hope everything goes well. You're amazing and I'm glad you decided to start this blog!

  2. We'll keep you in our prayers!
    Good job on showing Satan what's up and getting on your knees. I think everyone knows how hard that can be sometimes. Hang in there! Love your maternity pics I saw. Super cute.

  3. I am praying for you, Thomas, and baby Whitney! Have you checked out Sofia's story? She is a CDH survivor, and her blog is She is thriving and doing wonderfully! One thing to remember too, is that typically baby girls do better then baby boys. I hope that you get the package we sent, soon! HUGS

  4. Praying for precious Whitney and your family. Stay strong for your little girl and believe in miracles! Believe your little girl will come home! Have faith in Whitney. Praying for strength for your warrior princess.

    Good luck with the delivery! Take lots of pictures and videos and cherish your little girl.

    Tracy Meats, Ian's mom from CHERUBS

  5. I hope your delivery is fantastic and that you recover very, very quickly!! I have been peeking in on you here to see if your little one is making her debut. I'm Quinn's mom, by the way.

    A bit of encouragement for you... Quinn has improved so much in the past day that the doctors are talking CPAP for her this weekend. Two days ago, she was at 100% oxygen, her vents were up, and she had a 2 chest tubes inserted. My only advice for you is to keep in mind that things change FAST, and in both directions with these babes. It's emotionally devastating, but you'll get through it. I can't wait to see pics of miss whitney.

    I'm sending prayers.