Battle with Right-Sided Congenital Diaphragmatic Hernia (CDH)

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Saturday, July 24, 2010

Photo Log: Day 4, July 24

I got up early to see Whitney and found the nurses paired her up with her new friend, Funky Bear.

She still has her purple bow and awesome hairdo.

Funky Bear! Alicia's has had this bear for many years.

I liked it so much, I couldn't stop taking pictures!

Okay, I swear this is the last one. How cute!

Later on they did a head ultrasound to check if there was any bleeding around her brain. The results came up clean, but the ultrasound gel messed up her awesome hairdo, so Alicia gave her a Flamin' rockstar hairdo.

Whitney resting peacefully with her two guardians, Funky Bear and Birthday Bear.

Mommy and Whitney.

Daddy and Whitney.

Alicia and I went to see Whitney again tonight and found the nurses constructing a shoe-string-like set-up with the ventilator tubes. They set it up this way so that the tubes didn't rest on her chest. Any little thing to help reduce pressure of her chest helps.

Mom and Whitney holding hands.

I like the detail in this photo, just precious.


  1. She is so beautiful. Our prayers are with mommy, daddy and especially baby Whitney.

  2. Whitney is so incredibly beautiful! I am so happy to hear that she is doing well on ECMO. I will be praying for no brain bleeds, the circuit to stay clear of blood clots, and for Whitney to come through her ECMO run with shining colors! Every day is a gift from God with Whitney, and I hope will all of my heart that you have your entire life to spend with her.

  3. Hi my name is Christy Michel. I am a friend of megan skaggs. 1st I want to say Congrats on the delivery of your beautiful daughter Whitney. Her beauty takes my breath away :) I will be praying for your daughter and for your family. May you have many boring days with ecmo. Please get some rest while whitney is on ecmo. You will need it when she comes off. I enjoy the pics so please post as many as you wish (you can never have to many) :)
    ~Christy Michel

  4. She is so adorable! I can't get over how much hair she has and that adorable little face! i'm glad you posted so many pictures, she is beautiful!

  5. We just want you to know that we are thinking of you guys often. The pictures are incredible. She is so beautiful and I hope we get to meet her someday. I want you to call if you need anything, because we'd love to help however we can! I'm so glad she's doing well on the ECMO. She looks so completely normal and beautiful, it's hard to imagine that there's anything wrong! We love you guys!

  6. She is such a blessing and gorgeous:) Love the pink bow and new hair style. We pray for her often and know she is in great Hands. Love every picture and No you cant take enough of them! Much Love Aunt Wendy and Uncle Dan B

  7. Whitney is beautiful, love her hair! Praying for you three! Stay strong Whitney and keep fighting!!

    Tracy, Ian's mom from CHERUBS

  8. Baby Whitney is absolutely precious...Glad she is doing well, and I pray she continues to do so. God give you both as parents the love, patience and strength through baby Whitney's journey of life :) God bless you and your family, always!

    Sandy Camen

  9. Just found the link to your blog on Facebook and read your story. I will be praying for your precious baby Whitney! I will be praying also for you and your husband to be strong in your faith and trust in God to heal your baby. He has already brought her so far!

    Psalm 34:3 "I sought the LORD and he answered me and delivered me from all my fears." This verse has been one of many that has sustained me. I am 37 weeks pregnant with a LCDH baby..

    Liz Dooley

  10. Thomas and Alicia~

    Thank you for sharing updates and pictures of Whitney. Your family is on the prayer chain at our church. There are people praying for miraculous healing for Whitney several times a day. Your story is one that illustrates the three greatest commandments: faith, hope, and love.

    Christine Wiley (Stephen's mom)